Weird Experiences of Hypermobility

-

Alright, this is more about body, but also about my brain's reaction to stuff about my body.


For quite a while, I've been aware that I was hypermobile, and that a number of the weird jumping joint issues I've had on and off since I was a kid were likely related to that.

When I first started having these discussions, I concluded that, while I was definitely hypermobile, my hypermobility seemed to be different than a lot of my friends, and I concluded that I probably had a non-standard variant of something. I had some vague hypotheses, but mostly settled with the "definitely hypermobile, but in a weird way" and was fine with that.

In recent years, more and more of my friends have been getting diagnosed or self-diagnosing with hEDS, and I started to wonder. A lot of the experiences were shared. A lot of things did make sense. It still felt like I was a little different, but maybe that was just the feeling that your own experiences are always unique.

Yesterday, I went to a PT who ran down the hEDS checklist with me. There was absolutely no question that I was hypermobile. Even with the Beighton score alone I qualified thoroughly on that, and those aren't the most hypermobile things on my body, generally. But on the other things, some were borderline, and some didn't make it. Overall, I do not have hEDS. Which means that my original assessment of "I'm hypermobile, but maybe differently than the other people I'm around" was probably true? Maybe this explains some of why I'm more hypermobile than some other people I know but seem to have fewer negative effects than I might expect from that (although there are still plenty to go around).

At first it felt a little weird and maybe invalidating to realize that I wasn't actually hEDS. But it actually wound up feeling weirdly validating to realize that my original impression was more correct than everything I got swept up in later

Comments

Post a Comment

Popular posts from this blog

Accommodations

-
Image
Recently I had two very different experiences around accommodations and imposter syndrome.  In the first one, I was in a zoom training. I tend to have a really hard time keeping focused in zoom trainings. I have found that having the transcript going helps a lot. When the speaker is going too slow and I get bored and my brain wanders off, I can read back in the transcript and catch myself up. Zoom automatically has this available unless you turn it off, so it doesn't add any work for the people running the training. I went looking to turn the transcript on, and I didn't have access to do so, which means that they had turned this feature off. I asked if they could allow access to it.       This led to 10 minutes of waiting while they tried to figure out whether they could turn it on from inside zoom (it's normally a feature linked to the account) or how to deal with this. Well before this was over, I both felt bad for wasting everyone's time and was also angry wi...
Read more

Yom Kippur and Pedagogy

-
I’m a college professor, and we talk a lot about strategies for teaching and helping our students. In this context, we use two types of assessment: formative assessment and summative assessment. Summative assessment is when you look everything over and give the student a grade. Formative assessment, on the other hand, is when you look at the student’s work, well before the end of the term and say “you didn’t get this answer right”, “your writing here isn’t in the right format”, or “you need more citations to support this assertion.” This type of assessment is how we learn. If you’re self-motivated, you can learn just fine without summative assessment. You don’t need grades to learn. You do need formative assessment. Someone (which could be yourself!) needs to look at your work so far and say “This part looks good. This part needs work. And over here, it seems like you’re not really getting the concept we’re working on.” Without formative assessment, you don’t know what you still need t...
Read more

Echolocation

-
First actual new post on the blog! One of my minor superpowers is very good directional hearing. When I was in college, I took an improv theater class. At one point, there was a game, where one person was blindfolded, and the instructor took a ball of paper and tossed it into the center of the room. The blindfolded person then had to retrieve the paper ball. Until I watched other people, I simply didn't understand why this was a game. For me, it was not much harder than it would have been with my eyes open. Locating the paper ball by the sound it made was about as hard as looking to see where it was, then looking away and picking it up. It was a trivial task. Watching other people do it made me realize that was not true for everyone. Coming off of this, I have also taught myself very basic echolocation. When I am in a dark environment, I will made small ticking sounds. I can use these to identify nearby large obstacles. It's not anything like the detail I would get with sight: ...
Read more